The Hidden Village of Aspergers

January 1, 2014

And 2014 begins.

I am sitting here, in my kitchen, playing Farm Heroes. The happy, smiling faces of the cartoon fruit and vegetables make me sad for some reason. I think it’s because I’m feeling a little flat and empty after spending time with my friends and family. Post-Christmas comedown and post-exertional fatigue (I’ve not been exercising, but I have been busy) has kicked in; I just want to sleep. I’m amazed I even can sum up the brain power to type this. I didn’t go out last night because of it. I just stayed in and watched Wayne’s World.

So, 2013. It’s been hit and miss. On the plus side, I met new people, went to Barcelona alone and had a fantastic time at Primavera. I became a lot closer to my stepdad, not that we weren’t in the first place, had a fun time with the family at Ness Gardens (rain notwithstanding), got to see a football match for the first time in years (it was Cambridge United, not Everton), and saw more Space gigs than you can shake a stick at. The last gig I saw was on Halloween in London, and after talking to him backstage, Tommy Scott got me to come onstage with him for The Ballad Of Tom Jones. We both hammed it up, and afterwards, he gave me a hug and told me I’d done the song proud, while Franny Griffiths smiled at me and Phil Hartley also gave me a hug backstage, and the audience were great. I still can’t quite believe it happened.

On the down side, my best mate moved to Oxford, I had a horrible panic attack at a Space gig, my mum went into rehab, I stopped going to synagogue because choir stressed me out, and I had to deal with problems at work, delusions and paranoia. A good deal of it is to do with Space. I find some of the band very hard to read and worry that they dislike me and do not appreciate me coming backstage, although Franny did say at the Hebden Bridge gig that he was cool with it. Then again, they haven’t told me to fuck off, Franny actually got somewhat irritated with me when I called myself a ‘dumb whore’ and told me to stop putting myself down, and the one time I did get kicked out of the dressing room, all the other fans who were there got kicked out too as the band were getting changed, which is fair enough. I also rely on alcohol as a coping mechanism. It’s not a case of being starstruck; I know Space are only human. It’s more a case of worrying a lot about appropriate or inappropriate behaviour and how other people might see me.

Communication is a problem I have in general, and when I’m able to gather my thoughts more coherently, I’ll blog on it, because sometimes it’s like trying to navigate my way through a forest, blindfolded. I’m not always good at expressing myself, I can’t always detect nuance and like Katniss Everdeen in The Hunger Games, I instantly suspect the worst of people and find it hard to trust others. I have to remember that just because some people hated me behind my back, and were only afraid to tell me how they really felt to my face because they knew I was mentally ill and feared I would flip out, does not mean everyone is like that.

I have plans for this year. I’ll be going to Space in March, at London, Liverpool and Manchester, and aim to get over my fear and paranoia. I’ve also got Nine Inch Nails and Primavera Sound coming up – I’ll be going back to Barcelona – and I plan to go down to Cambridge for my birthday, as well as visiting my auntie Chris, my dad’s sister, at the end of this month. I may well be going to Berlin as well – I haven’t decided yet. Hopefully there will not be a repeat of the unpleasant experience at Schonfeld Airport.

Also, I had a bit of a meltdown at Christmas when I got into an argument with my mum. She wants to get me a cleaner, as I have trouble taking care of my flat. I admit I have mixed feelings about this; I’m worried some of my friends will hate me for it and call me a spoiled brat, and I feel guilty for not being able to clean as much as I would like. I admit it; I am not a tidy person. I put cardboard and plastic in the recycling bins, I cook and wash the dishes, I change my sheets weekly and do my laundry regularly, I hoover, I clean the lav (again, not as much as I should), but it’s not enough. I haven’t cleaned the skirting boards, I barely wash the floors or dust. Mopping makes my back ache, as does any work on my knees. I think it’s a case of feeling like I can’t be that bad, that I’m not disabled to the extent that others are and I’m privileged and it could be a lot worse…and then the tiredness hits and I can barely think straight and I just want to crawl into bed. There’s a lot of internalised ableism and foolish pride going on as well. I’m still ashamed to admit I need help in some areas. When a lot of your friends are mentally ill and/or more understanding than most people, you become so used to that world that you almost forget how the majority of people see you. Cutting my arms and pouring boiling water over them at work seems normal to me, as does throwing up in the toilet after a binge…but to other people, it can come across as a bit scary.

I’m staying on the Venlafaxine for the time being. I’m not 100%, but let’s be realistic, I’m probably going to be on meds for the rest of my life. Still, I have some control over the delusions; when the Liverpool fans on my Facebook and Twitter sneer at Evertonians, I have to force myself to remember that it’s not personal and they’re not trying to get me, for instance. Hopefully it will get better. Fingers crossed.

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